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Project: Assessment Tools for Palliative Care

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Tools Identified in the Supplemental Searches Renee Wilson 1, 2, 3, 4

Associated Studies (each link opens a new tab)

Title Author Year
Information and communication technology for managing pain in palliative care: a review of the literature. Allsop MJ., Taylor S., Mulvey MR., Bennett MI., Bewick BM. 2015
Interventions for alleviating cancer-related dyspnea: a systematic review. Ben-Aharon I., Gafter-Gvili A., Paul M., Leibovici L., Stemmer SM. 2008
A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT Principal Investigators. -- Not Found -- -- Not Found --
Hopelessness at the end of life: the utility of the hopelessness scale with terminally ill cancer patients. Abbey JG., Rosenfeld B., Pessin H., Breitbart W. 2006
Palliative care in advanced dementia: a randomized controlled trial and descriptive analysis. Ahronheim JC., Morrison RS., Morris J., Baskin S., Meier DE. 2000
Outcome evaluation of a randomized trial of the PhoenixCare intervention: program of case management and coordinated care for the seriously chronically ill. Aiken LS., Butner J., Lockhart CA., Volk-Craft BE., Hamilton G., Williams FG. 2006
Major depression, adjustment disorders, and post-traumatic stress disorder in terminally ill cancer patients: associated and predictive factors. Akechi T., Okuyama T., Sugawara Y., Nakano T., Shima Y., Uchitomi Y. 2004
Evaluation of quality-of-life measures for use in palliative care: a systematic review. Albers G., Echteld MA., de Vet HC., Onwuteaka-Philipsen BD., van der Linden MH., Deliens L. 2010
Families' perceptions of veterans' distress due to post-traumatic stress disorder-related symptoms at the end of life. Alici Y., Smith D., Lu HL., Bailey A., Shreve S., Rosenfeld K., Ritchie C., Casarett DJ. 2010
Implementing patient-reported outcome measures in palliative care clinical practice: a systematic review of facilitators and barriers. Antunes B., Harding R., Higginson IJ. 2014
Reliability testing of the FAMCARE-2 scale: measuring family carer satisfaction with palliative care. Aoun S., Bird S., Kristjanson LJ., Currow D. 2010
Educating nursing home staff about the progression of dementia and the comfort care option: impact on family satisfaction with end-of-life care. Arcand M., Monette J., Monette M., Sourial N., Fournier L., Gore B., Bergman H. 2009
Is failure to meet spiritual needs associated with cancer patients' perceptions of quality of care and their satisfaction with care? Astrow AB., Wexler A., Texeira K., He MK., Sulmasy DP. 2007
Family satisfaction with end-of-life care in seriously ill hospitalized adults. Baker R., Wu AW., Teno JM., Kreling B., Damiano AM., Rubin HR., Roach MJ., Wenger NS., Phillips RS., Desbiens NA., Connors AF., Knaus W., Lynn J. 2000
Proxy perspectives regarding end-of-life care for persons with cancer. Bakitas M., Ahles TA., Skalla K., Brokaw FC., Byock I., Hanscom B., Lyons KD., Hegel MT. 2008
Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial. Bakitas M., Lyons KD., Hegel MT., Balan S., Brokaw FC., Seville J., Hull JG., Li Z., Tosteson TD., Byock IR., Ahles TA. 2009
Early Versus Delayed Initiation of Concurrent Palliative Oncology Care: Patient Outcomes in the ENABLE III Randomized Controlled Trial. Bakitas MA., Tosteson TD., Li Z., Lyons KD., Hull JG., Li Z., Dionne-Odom JN., Frost J., Dragnev KH., Hegel MT., Azuero A., Ahles TA. 2015
Development of the Grief Experience Questionnaire. Barrett TW., Scott TB. 1989
Primary Results of the Patient-Centered Disease Management (PCDM) for Heart Failure Study: A Randomized Clinical Trial. Bekelman DB., Plomondon ME., Carey EP., Sullivan MD., Nelson KM., Hattler B., McBryde CF., Lehmann KG., Gianola K., Heidenreich PA., Rumsfeld JS. 2015
The EORTC QLQ-LC13: a modular supplement to the EORTC Core Quality of Life Questionnaire (QLQ-C30) for use in lung cancer clinical trials. EORTC Study Group on Quality of Life. Bergman B., Aaronson NK., Ahmedzai S., Kaasa S., Sullivan M. 1994
Clinical and psychometric validation of a questionnaire module, the EORTC QLQ-STO 22, to assess quality of life in patients with gastric cancer. Blazeby JM., Conroy T., Bottomley A., Vickery C., Arraras J., Sezer O., Moore J., Koller M., Turhal NS., Stuart R., Van Cutsem E., D'haese S., Coens C. 2004
Clinical and psychometric validation of an EORTC questionnaire module, the EORTC QLQ-OES18, to assess quality of life in patients with oesophageal cancer. Blazeby JM., Conroy T., Hammerlid E., Fayers P., Sezer O., Koller M., Arraras J., Bottomley A., Vickery CW., Etienne PL., Alderson D. 2003
Perceived exertion as an indicator of somatic stress. Borg G. 1970
Effects of person-centred and integrated chronic heart failure and palliative home care. PREFER: a randomized controlled study. Brännström M., Boman K. 2014
Increased satisfaction with care and lower costs: results of a randomized trial of in-home palliative care. Brumley R., Enguidanos S., Jamison P., Seitz R., Morgenstern N., Saito S., McIlwane J., Hillary K., Gonzalez J. 2007
Measuring core bereavement phenomena. Burnett P., Middleton W., Raphael B., Martinek N. 1997
Measuring quality of life for patients with terminal illness: the Missoula-VITAS quality of life index. Byock IR., Merriman MP. 1998
Lifestyle interference and emotional distress in family caregivers of advanced cancer patients. Cameron JI., Franche RL., Cheung AM., Stewart DE. 2002
Caregiver satisfaction with out-patient oncology services: utility of the FAMCARE instrument and development of the FAMCARE-6. Carter GL., Lewin TJ., Gianacas L., Clover K., Adams C. 2011
Measuring families' perceptions of care across a health care system: preliminary experience with the Family Assessment of Treatment at End of Life Short form (FATE-S). Casarett D., Shreve S., Luhrs C., Lorenz K., Smith D., De Sousa M., Richardson D. 2010
The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). Cedarbaum JM., Stambler N., Malta E., Fuller C., Hilt D., Thurmond B., Nakanishi A. 1999
Real-time clinical application of quality-of-life assessment in advanced lung cancer. Chang CH., Cella D., Masters GA., Laliberte N., O'Brien P., Peterman A., Shervin D. 2002
Validation of the Edmonton Symptom Assessment Scale. Chang VT., Hwang SS., Feuerman M. 2000
Shorter symptom assessment instruments: the Condensed Memorial Symptom Assessment Scale (CMSAS). Chang VT., Hwang SS., Kasimis B., Thaler HT. 2004
Effectiveness of advanced illness care teams for nursing home residents with dementia. Chapman DG., Toseland RW. 2007
Palliative care teams in the intensive care unit: a randomised, controlled, feasibility study. Cheung W., Aggarwal G., Fugaccia E., Thanakrishnan G., Milliss D., Anderson R., Stock D., Bird H., Tan J., Fryc AC. 2010
The patient dignity inventory: a novel way of measuring dignity-related distress in palliative care. Chochinov HM., Hassard T., McClement S., Hack T., Kristjanson LJ., Harlos M., Sinclair S., Murray A. 2008
Implementing touch-screen technology to enhance recognition of distress. Clark K., Bardwell WA., Arsenault T., DeTeresa R., Loscalzo M. 2009
Randomized controlled trial of maintaining quality of life during radiotherapy for advanced cancer. Clark MM., Rummans TA., Atherton PJ., Cheville AL., Johnson ME., Frost MH., Miller JJ., Sloan JA., Graszer KM., Haas JG., Hanson JM., Garces YI., Piderman KM., Lapid MI., Netzel PJ., Richardson JW., Brown PD. 2013
Family perceptions of end-of-life care for long-term care residents with dementia: differences between the United States and the Netherlands. Cohen LW., van der Steen JT., Reed D., Hodgkinson JC., van Soest-Poortvliet MC., Sloane PD., Zimmerman S. 2012
QOLLTI-F: measuring family carer quality of life. Cohen R., Leis AM., Kuhl D., Charbonneau C., Ritvo P., Ashbury FD. 2006
Living with cancer: "good" days and "bad" days--what produces them? Can the McGill quality of life questionnaire distinguish between them? Cohen SR., Mount BM. 2000
Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain. Cohen SR., Mount BM., Bruera E., Provost M., Rowe J., Tong K. 1997
Family evaluation of hospice care: results from voluntary submission of data via website. Connor SR., Teno J., Spence C., Smith N. 2005
Development and initial validation of a family appraisal of caregiving questionnaire for palliative care. Cooper B., Kinsella GJ., Picton C. 2006
Integrating palliative and critical care: evaluation of a quality-improvement intervention. Curtis JR., Treece PD., Nielsen EL., Downey L., Shannon SE., Braungardt T., Owens D., Steinberg KP., Engelberg RA. 2008
Quality indicators for palliative care: update of a systematic review. De Roo ML., Leemans K., Claessen SJ., Cohen J., Pasman HR., Deliens L., Francke AL. 2013
The life closure scale: additional psychometric testing of a tool to measure psychological adaptation in death and dying. Dobratz MC. 2004
Which measurement scales should we use to measure breathlessness in palliative care? A systematic review. Dorman S., Byrne A., Edwards A. 2007
Development of a patient-specific dyspnoea questionnaire in motor neurone disease (MND): the MND dyspnoea rating scale (MDRS). Dougan CF., Connell CO., Thornton E., Young CA. 2000
A new tool to assess family caregivers' burden during end-of-life care. Dumont S., Fillion L., Gagnon P., Bernier N. 2008
A nurse practitioner directed intervention improves the quality of life of patients with metastatic cancer: results of a randomized pilot study. Dyar S., Lesperance M., Shannon R., Sloan J., Colon-Otero G. 2012
Validation of a new dyspnea measure: the UCSD Shortness of Breath Questionnaire. University of California, San Diego. Eakin EG., Resnikoff PM., Prewitt LM., Ries AL., Kaplan RM. 1998
Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service. Edmonds P., Hart S., --, Vivat B., Burman R., Silber E., Higginson IJ. 2010
Effects of a program for coordinated care of advanced illness on patients, surrogates, and healthcare costs: a randomized trial. Engelhardt JB., McClive-Reed KP., Toseland RW., Smith TL., Larson DG., Tobin DR. 2006
Fatigue and its risk factors in cancer patients who seek emergency care. Escalante CP., Manzullo EF., Lam TP., Ensor JE., Valdres RU., Wang XS. 2008
Validation of a symptom measure suitable for use among palliative care patients in the community: CAMPAS-R. Ewing G., Todd C., Rogers M., Barclay S., McCabe J., Martin A. 2004
Variability in answers to a questionnaire on respiratory symptoms. FAIRBAIRN AS., WOOD CH., FLETCHER CM. 1959
Is a specialist breathlessness service more effective and cost-effective for patients with advanced cancer and their carers than standard care? Findings of a mixed-method randomised controlled trial. Farquhar MC., Prevost AT., McCrone P., Brafman-Price B., Bentley A., Higginson IJ., Todd C., Booth S. 2014
The clinical and cost effectiveness of a Breathlessness Intervention Service for patients with advanced non-malignant disease and their informal carers: mixed findings of a mixed method randomised controlled trial. Farquhar MC., Prevost AT., McCrone P., Brafman-Price B., Bentley A., Higginson IJ., Todd CJ., Booth S. 2016
Development of the Texas Inventory of Grief. Faschingbauer TR., Devaul RA., Zisook S. 1977
Nationwide veterans affairs quality measure for cancer: the family assessment of treatment at end of life. Finlay E., Shreve S., Casarett D. 2008
Phase II study of an outpatient palliative care intervention in patients with metastatic cancer. Follwell M., Burman D., Le LW., Wakimoto K., Seccareccia D., Bryson J., Rodin G., Zimmermann C. 2009
Prevalence and determinants of complicated grief in general population. Fujisawa D., Miyashita M., Nakajima S., Ito M., Kato M., Kim Y. 2010
Factorial validity of the Texas Revised Inventory of Grief-Present scale among bereaved older adults. Futterman A., Holland JM., Brown PJ., Thompson LW., Gallagher-Thompson D. 2010
Impact of an inpatient palliative care team: a randomized control trial. Gade G., Venohr I., Conner D., McGrady K., Beane J., Richardson RH., Williams MP., Liberson M., Blum M., Della Penna R. 2008
Development and validation of a standardized measure of activity of daily living in patients with severe COPD: the London Chest Activity of Daily Living scale (LCADL). Garrod R., Bestall JC., Paul EA., Wedzicha JA., Jones PW. 2000
Does palliative care improve quality? A survey of bereaved family members. Gelfman LP., Meier DE., Morrison RS. 2008
Validation of a vertical visual analogue scale as a measure of clinical dyspnea. Gift AG. -- Not Found --
Validity of the numeric rating scale as a measure of dyspnea. Gift AG., Narsavage G. 1998
Pain and fatigue management: results of a nursing randomized clinical trial. Given B., Given CW., McCorkle R., Kozachik S., Cimprich B., Rahbar MH., Wojcik C. 2002
Does hospital at home for palliative care facilitate death at home? Randomised controlled trial. Grande GE., Todd CJ., Barclay SI., Farquhar MC. 1999
A randomized controlled trial of a hospital at home service for the terminally ill. Grande GE., Todd CJ., Barclay SI., Farquhar MC. 2000
Family member satisfaction with end-of-life decision making in the ICU. Gries CJ., Curtis JR., Wall RJ., Engelberg RA. 2008
Emergency Department-Initiated Palliative Care in Advanced Cancer: A Randomized Clinical Trial. Grudzen CR., Richardson LD., Johnson PN., Hu M., Wang B., Ortiz JM., Kistler EA., Chen A., Morrison RS. 2016
Identifying bereaved subjects at risk of complicated grief: Predictive value of questionnaire items in a cohort study. Guldin MB., O'Connor M., Sokolowski I., Jensen AB., Vedsted P. 2011
A preliminary study of the utility of the brief hospice inventory. Guo H., Fine PG., Mendoza TR., Cleeland CS. 2001
A measure of quality of life for clinical trials in chronic lung disease. Guyatt GH., Berman LB., Townsend M., Pugsley SO., Chambers LW. 1987
Development and testing of a new measure of health status for clinical trials in heart failure. Guyatt GH., Nogradi S., Halcrow S., Singer J., Sullivan MJ., Fallen EL. -- Not Found --
Understanding bereaved caregiver evaluations of the quality of dying and death: an application of cognitive interviewing methodology to the quality of dying and death questionnaire. Hales S., Gagliese L., Nissim R., Zimmermann C., Rodin G. 2012
Quality of care in a Veterans Affairs' nursing home-based hospice unit. Hallenbeck J., Hickey E., Czarnowski E., Lehner L., Periyakoil VS. 2007
The imPaCT study: a randomised controlled trial to evaluate a hospital palliative care team. Hanks GW., Robbins M., Sharp D., Forbes K., Done K., Peters TJ., Morgan H., Sykes J., Baxter K., Corfe F., Bidgood C. 2002
Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. Hearn J., Higginson IJ. 1999
Development and testing of the spiritual needs inventory for patients near the end of life. Hermann C. 2006
Family reports of dying patients' distress: the adaptation of a research tool to assess global symptom distress in the last week of life. Hickman SE., Tilden VP., Tolle SW. 2001
An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. Higginson IJ., Bausewein C., Reilly CC., Gao W., Gysels M., Dzingina M., McCrone P., Booth S., Jolley CJ., Moxham J. 2014
Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. Higginson IJ., Gao W., Jackson D., Murray J., Harding R. 2010
Development and validation of the Hogan Grief Reaction Checklist. Hogan NS., Greenfield DB., Schmidt LA. -- Not Found --
Results of a Hospital-Based Palliative Care Intervention for Patients With an Acute Exacerbation of Chronic Heart Failure. Hopp FP., Zalenski RJ., Waselewsky D., Burn J., Camp J., Welch RD., Levy P. 2016
Measuring the psychosocial characteristics of family caregivers of palliative care patients: psychometric properties of nine self-report instruments. Hudson PL., Hayman-White K. 2006
A randomized trial of the cost effectiveness of VA hospital-based home care for the terminally ill. Hughes SL., Cummings J., Weaver F., Manheim L., Braun B., Conrad K. 1992
Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical center. Hwang SS., Chang VT., Alejandro Y., Osenenko P., Davis C., Cogswell J., Srinivas S., Kasimis B. 2003
The Ironson-woods Spirituality/Religiousness Index is associated with long survival, health behaviors, less distress, and low cortisol in people with HIV/AIDS. Ironson G., Solomon GF., Balbin EG., O'Cleirigh C., George A., Kumar M., Larson D., Woods TE. 2002
Brief measure for screening complicated grief: reliability and discriminant validity. Ito M., Nakajima S., Fujisawa D., Miyashita M., Kim Y., Shear MK., Ghesquiere A., Wall MM. 2012
Racial differences in next-of-kin participation in an ongoing survey of satisfaction with end-of-life care: a study of a study. Johnson KS., Elbert-Avila K., Kuchibhatla M., Tulsky JA. 2006
A self-complete measure of health status for chronic airflow limitation. The St. George's Respiratory Questionnaire. Jones PW., Quirk FH., Baveystock CM., Littlejohns P. 1992
The grief evaluation measure (GEM): an initial validation study. Jordan JR., Baker J., Matteis M., Rosenthal S., Ware ES. 2005
Quality of life in palliative cancer care: results from a cluster randomized trial. Jordhøy MS., Fayers P., Loge JH., Ahlner-Elmqvist M., Kaasa S. 2001
A palliative-care intervention and death at home: a cluster randomised trial. Jordhøy MS., Fayers P., Saltnes T., Ahlner-Elmqvist M., Jannert M., Kaasa S. 2000
The Edmonton Functional Assessment Tool: preliminary development and evaluation for use in palliative care. Kaasa T., Loomis J., Gillis K., Bruera E., Hanson J. 1997
The Edmonton Functional Assessment Tool: further development and validation for use in palliative care. Kaasa T., Wessel J. 2001
Utilizing pain assessment scales increases the frequency of diagnosing pain among elderly nursing home residents. Kamel HK., Phlavan M., Malekgoudarzi B., Gogel P., Morley JE. 2001
Hospice role in alleviating the emotional stress of terminal patients and their families. Kane RL., Klein SJ., Bernstein L., Rothenberg R., Wales J. 1985
A randomised controlled trial of hospice care. Kane RL., Wales J., Bernstein L., Leibowitz A., Kaplan S. 1984
Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis. Kavalieratos D., Corbelli J., Zhang D., Dionne-Odom JN., Ernecoff NC., Hanmer J., Hoydich ZP., Ikejiani DZ., Klein-Fedyshin M., Zimmermann C., Morton SC., Arnold RM., Heller L., Schenker Y. 2016
Health care proxy grief symptoms before the death of nursing home residents with advanced dementia. Kiely DK., Prigerson H., Mitchell SL. 2008
The validity and reliability of scales for the evaluation of end-of-life care in advanced dementia. Kiely DK., Volicer L., Teno J., Jones RN., Prigerson HG., Mitchell SL. -- Not Found --
The Demoralization Scale: a report of its development and preliminary validation. Kissane DW., Wein S., Love A., Lee XQ., Kee PL., Clarke DM. 2004
Family members' care expectations, care perceptions, and satisfaction with advanced cancer care: results of a multi-site pilot study. Kristjanson LJ., Leis A., Koop PM., Carrière KC., Mueller B. 1997
Predictive role of different dimensions of burden for risk of complicated grief in caregivers of terminally ill patients. Lai C., Luciani M., Morelli E., Galli F., Cappelluti R., Penco I., Aceto P., Lombardo L. 2014
Development and testing of the Pulmonary Functional Status and Dyspnea Questionnaire (PFSDQ). Lareau SC., Carrieri-Kohlman V., Janson-Bjerklie S., Roos PJ. -- Not Found --
Evaluation of dyspnea during physical and speech activities in patients with pulmonary diseases. Lee L., Friesen M., Lambert IR., Loudon RG. 1998
Evaluating symptoms in chronic obstructive pulmonary disease: validation of the Breathlessness, Cough and Sputum Scale. Leidy NK., Schmier JK., Jones MK., Lloyd J., Rocchiccioli K. 2003
Measuring Experience With End-of-Life Care: A Systematic Literature Review. Lendon JP., Ahluwalia SC., Walling AM., Lorenz KA., Oluwatola OA., Anhang Price R., Quigley D., Teno JM. 2015
A shortened version of an instrument measuring bereavement. Lev E., Munro BH., McCorkle R. 1993
Validation of the Cardiovascular Limitations and Symptoms Profile (CLASP) in chronic stable angina. Lewin RJ., Thompson DR., Martin CR., Stuckey N., Devlen J., Michaelson S., Maguire P. -- Not Found --
Measuring family satisfaction with care and quality of dying in the intensive care unit: does patient age matter? Lewis-Newby M., Curtis JR., Martin DP., Engelberg RA. 2011
Underutilization of mental health services among bereaved caregivers with prolonged grief disorder. Lichtenthal WG., Nilsson M., Kissane DW., Breitbart W., Kacel E., Jones EC., Prigerson HG. 2011
The development of the Brief Edinburgh Depression Scale (BEDS) to screen for depression in patients with advanced cancer. Lloyd-Williams M., Shiels C., Dowrick C. 2007
The FAMCARE-Patient scale: measuring satisfaction with care of outpatients with advanced cancer. Lo C., Burman D., Hales S., Swami N., Rodin G., Zimmermann C. 2009
Measuring patient satisfaction in oncology palliative care: psychometric properties of the FAMCARE-patient scale. Lo C., Burman D., Rodin G., Zimmermann C. 2009
The memorial symptom assessment scale: modified for use in understanding family caregivers' perceptions of cancer patients' symptom experiences. Lobchuk MM. 2003
Screening for depression in women with metastatic breast cancer: a comparison of the Beck Depression Inventory Short Form and the Hospital Anxiety and Depression Scale. Love AW., Grabsch B., Clarke DM., Bloch S., Kissane DW. 2004
Nurse-led palliative care for HIV-positive patients taking antiretroviral therapy in Kenya: a randomised controlled trial. Lowther K., Selman L., Simms V., Gikaara N., Ahmed A., Ali Z., Kariuki H., Sherr L., Higginson IJ., Harding R. 2015
Families' perceptions of end-of-life care in Veterans Affairs versus non-Veterans Affairs facilities. Lu H., Trancik E., Bailey FA., Ritchie C., Rosenfeld K., Shreve S., Furman C., Smith D., Wolff C., Casarett D. 2010
The feasibility, reliability and validity of the McGill Quality of Life Questionnaire-Cardiff Short Form (MQOL-CSF) in palliative care population. Lua PL., Salek S., Finlay I., Lloyd-Richards C. 2005
Reliability and validity of the Functional Assessment of Chronic Illness Therapy-Palliative care (FACIT-Pal) scale. Lyons KD., Bakitas M., Hegel MT., Hanscom B., Hull J., Ahles TA. 2009
Assessing pre-death grief in cancer caregivers using the Marwit-Meuser Caregiver Grief Inventory (MM-CGI). Marwit SJ., Chibnall JT., Dougherty R., Jenkins C., Shawgo J. 2008
Measuring grief in caregivers of persons with acquired brain injury. Marwit SJ., Kaye PN. 2006
Development and initial validation of an inventory to assess grief in caregivers of persons with Alzheimer's disease. Marwit SJ., Meuser TM. 2002
Development of a short form inventory to assess grief in caregivers of dementia patients. Marwit SJ., Meuser TM. 2005
The McCanse Readiness for Death Instrument (MRDI): a reliable and valid measure for hospice care. McCanse RP. 1995
A randomized clinical trial of home nursing care for lung cancer patients. McCorkle R., Benoliel JQ., Donaldson G., Georgiadou F., Moinpour C., Goodell B. 1989
An Advanced Practice Nurse Coordinated Multidisciplinary Intervention for Patients with Late-Stage Cancer: A Cluster Randomized Trial. McCorkle R., Jeon S., Ercolano E., Lazenby M., Reid A., Davies M., Viveiros D., Gettinger S. 2015
Dyspnoea, disability, and distance walked: comparison of estimates of exercise performance in respiratory disease. McGavin CR., Artvinli M., Naoe H., McHardy GJ. 1978
Quality of life in cancer patients: use of a revised Hospice Index. McMillan SC., Weitzner M. -- Not Found --
The relationships between family primary caregiver characteristics and satisfaction with hospice care, quality of life, and burden. Meyers JL., Gray LN. -- Not Found --
Psychometric properties of carer-reported outcome measures in palliative care: A systematic review. Michels CT., Boulton M., Adams A., Wee B., Peters M. 2016
Hospice care for patients with dementia. Mitchell SL., Kiely DK., Miller SC., Connor SR., Spence C., Teno JM. 2007
Agreement among family members in their assessment of the Quality of Dying and Death. Mularski R., Curtis JR., Osborne M., Engelberg RA., Ganzini L. 2004
Quality of dying in the ICU: ratings by family members. Mularski RA., Heine CE., Osborne ML., Ganzini L., Curtis JR. 2005
Factor structure of the Beck Hopelessness Scale in individuals with advanced cancer. Nissim R., Flora DB., Cribbie RA., Zimmermann C., Gagliese L., Rodin G. 2010
Next of kin perspectives on the experience of end-of-life care in a community setting. Norris K., Merriman MP., Curtis JR., Asp C., Tuholske L., Byock IR. 2007
Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers. Northouse L., Kershaw T., Mood D., Schafenacker A. 2005
Randomized clinical trial of a brief and extensive dyadic intervention for advanced cancer patients and their family caregivers. Northouse LL., Mood DW., Schafenacker A., Kalemkerian G., Zalupski M., LoRusso P., Hayes DF., Hussain M., Ruckdeschel J., Fendrick AM., Trask PC., Ronis DL., Kershaw T. 2013
Randomized clinical trial of a family intervention for prostate cancer patients and their spouses. Northouse LL., Mood DW., Schafenacker A., Montie JE., Sandler HM., Forman JD., Hussain M., Pienta KJ., Smith DC., Kershaw T. 2007
A confirmatory factor analysis of combined models of the Harvard Trauma Questionnaire and the Inventory of Complicated Grief-Revised: are we measuring complicated grief or posttraumatic stress? O'Connor M., Lasgaard M., Shevlin M., Guldin MB. 2010
Psychiatric disorders following first breast cancer recurrence: prevalence, associated factors and relationship to quality of life. Okamura M., Yamawaki S., Akechi T., Taniguchi K., Uchitomi Y. 2005
Towards a new clinical tool for needs assessment in the palliative care of cancer patients: the PNPC instrument. Osse BH., Vernooij MJ., Schadé E., Grol RP. 2004
A practical instrument to explore patients' needs in palliative care: the Problems and Needs in Palliative Care questionnaire short version. Osse BH., Vernooij-Dassen MJ., Schadé E., Grol RP. 2007
Hospital-based palliative medicine consultation: a randomized controlled trial. Pantilat SZ., O'Riordan DL., Dibble SL., Landefeld CS. 2010
Commonalities in grief responding across bereavement and non-bereavement losses. Papa A., Lancaster NG., Kahler J. 2014
Psychometric characteristics of dyspnea descriptor ratings in emergency department patients with exacerbated chronic obstructive pulmonary disease. Parshall MB. 2002
Reliability and validity of dyspnea sensory quality descriptors in heart failure patients treated in an emergency department. Parshall MB., Welsh JD., Brockopp DY., Heiser RM., Schooler MP., Cassidy KB. -- Not Found --
Respecting the spiritual side of advanced cancer care: a systematic review. Piderman KM., Kung S., Jenkins SM., Euerle TT., Yoder TJ., Kwete GM., Lapid MI. 2015
Measurement of dyspnea in patients treated with mechanical ventilation. Powers J., Bennett SJ. 1999
Prolonged grief disorder: Psychometric validation of criteria proposed for DSM-V and ICD-11. Prigerson HG., Horowitz MJ., Jacobs SC., Parkes CM., Aslan M., Goodkin K., Raphael B., Marwit SJ., Wortman C., Neimeyer RA., Bonanno GA., Bonanno G., Block SD., Kissane D., Boelen P., Maercker A., Litz BT., Johnson JG., First MB., Maciejewski PK. 2009
Inventory of Complicated Grief: a scale to measure maladaptive symptoms of loss. Prigerson HG., Maciejewski PK., Reynolds CF., Bierhals AJ., Newsom JT., Fasiczka A., Frank E., Doman J., Miller M. 1995
The comprehensive care team: a controlled trial of outpatient palliative medicine consultation. Rabow MW., Dibble SL., Pantilat SZ., McPhee SJ. 2004
Results of the promoting effective advance care planning for elders (PEACE) randomized pilot study. Radwany SM., Hazelett SE., Allen KR., Kropp DJ., Ertle D., Albanese TH., Fosnight SM., Moore PS. 2014
The Needs Assessment for Advanced Cancer Patients (NA-ACP): a measure of the perceived needs of patients with advanced, incurable cancer. a study of validity, reliability and acceptability. Rainbird KJ., Perkins JJ., Sanson-Fisher RW. 2005
Bereaved family members' evaluation of hospice care: what factors influence overall satisfaction with services? Rhodes RL., Mitchell SL., Miller SC., Connor SR., Teno JM. 2008
African American bereaved family members' perceptions of the quality of hospice care: lessened disparities, but opportunities to improve remain. Rhodes RL., Teno JM., Connor SR. 2007
Measuring quality of palliative care: psychometric properties of the FAMCARE Scale. Ringdal GI., Jordhøy MS., Kaasa S. 2003
Hopelessness and terminal illness: the construct of hopelessness in patients with advanced AIDS. Rosenfeld B., Gibson C., Kramer M., Breitbart W. 2004
The two-track model of bereavement questionnaire (TTBQ): development and validation of a relational measure. Rubin SS., Nadav OB., Malkinson R., Koren D., Goffer-Shnarch M., Michaeli E. 2009
Impacting quality of life for patients with advanced cancer with a structured multidisciplinary intervention: a randomized controlled trial. Rummans TA., Clark MM., Sloan JA., Frost MH., Bostwick JM., Atherton PJ., Johnson ME., Gamble G., Richardson J., Brown P., Martensen J., Miller J., Piderman K., Huschka M., Girardi J., Hanson J. 2006
Measuring the meaning of life for patients with incurable cancer: the life evaluation questionnaire (LEQ). Salmon P., Manzi F., Valori RM. 1996
Late referral to hospice and bereaved family member perception of quality of end-of-life care. Schockett ER., Teno JM., Miller SC., Stuart B. 2005
Benefits and challenges in use of a standardized symptom assessment instrument in hospice. Schulman-Green D., Cherlin EJ., McCorkle R., Carlson MD., Pace KB., Neigh J., Hennessy M., Johnson-Hurzeler R., Bradley EH. 2010
A comparison of the original chronic respiratory questionnaire with a standardized version. Schünemann HJ., Griffith L., Jaeschke R., Goldstein R., Stubbing D., Austin P., Guyatt GH. 2003
Evaluation of the Missoula-VITAS Quality of Life Index--revised: research tool or clinical tool? Schwartz CE., Merriman MP., Reed G., Byock I. 2005
Measuring patient treatment preferences in end-of-life care research: applications for advance care planning interventions and response shift research. Schwartz CE., Merriman MP., Reed GW., Hammes BJ. 2004
A scoping review of bereavement risk assessment measures: Implications for palliative care. Sealey M., Breen LJ., O'Connor M., Aoun SM. 2015
A symptom-based measure of the severity of chronic lung disease: results from the Veterans Health Study. Selim AJ., Ren XS., Fincke G., Rogers W., Lee A., Kazis L. 1997
A psychometric evaluation of measures of spirituality validated in culturally diverse palliative care populations. Selman L., Siegert R., Harding R., Gysels M., Speck P., Higginson IJ. 2011
Screening for complicated grief among Project Liberty service recipients 18 months after September 11, 2001. Shear KM., Jackson CT., Essock SM., Donahue SA., Felton CJ. 2006
Patients dying with dementia: experience at the end of life and impact of hospice care. Shega JW., Hougham GW., Stocking CB., Cox-Hayley D., Sachs GA. 2008
Symptom assessment of patients with advanced cancer and AIDS and their family caregivers: the results of a quality-of-life pilot study. Sherman DW., Ye XY., Beyer McSherry C., Parkas V., Calabrese M., Gatto M. -- Not Found --
Inpatient palliative care for patients with acute heart failure: outcomes from a randomized trial. Sidebottom AC., Jorgenson A., Richards H., Kirven J., Sillah A. 2015
Distinguishable types of dyspnea in patients with shortness of breath. Simon PM., Schwartzstein RM., Weiss JW., Fencl V., Teghtsoonian M., Weinberger SE. 1990
Can we make reports of end-of-life care quality more consumer-focused? results of a nationwide quality measurement program. Smith D., Caragian N., Kazlo E., Bernstein J., Richardson D., Casarett D. 2011
Web-based collaborative care intervention to manage cancer-related symptoms in the palliative care setting. Steel JL., Geller DA., Kim KH., Butterfield LH., Spring M., Grady J., Sun W., Marsh W., Antoni M., Dew MA., Helgeson V., Schulz R., Tsung A. 2016
Measuring quality of life at the end of life: validation of the QUAL-E. Steinhauser KE., Clipp EC., Bosworth HB., McNeilly M., Christakis NA., Voils CI., Tulsky JA. 2004
A reliability and validity study of the McMaster Quality of Life Scale (MQLS) for a palliative population. Sterkenburg CA., King B., Woodward CA. 1996
Patients' ratings of quality and satisfaction with care at the end of life. Sulmasy DP., McIlvane JM. 2002
A scale for measuring patient perceptions of the quality of end-of-life care and satisfaction with treatment: the reliability and validity of QUEST. Sulmasy DP., McIlvane JM., Pasley PM., Rahn M. 2002
Prevalence and screening of dyspnea interfering with daily life activities in ambulatory patients with advanced lung cancer. Tanaka K., Akechi T., Okuyama T., Nishiwaki Y., Uchitomi Y. 2002
Early palliative care for patients with metastatic non-small-cell lung cancer. Temel JS., Greer JA., Muzikansky A., Gallagher ER., Admane S., Jackson VA., Dahlin CM., Blinderman CD., Jacobsen J., Pirl WF., Billings JA., Lynch TJ. 2010
Validation of Toolkit After-Death Bereaved Family Member Interview. Teno JM., Clarridge B., Casey V., Edgman-Levitan S., Fowler J. 2001
Family perspectives on end-of-life care at the last place of care. Teno JM., Clarridge BR., Casey V., Welch LC., Wetle T., Shield R., Mor V. 2004
Timing of referral to hospice and quality of care: length of stay and bereaved family members' perceptions of the timing of hospice referral. Teno JM., Shu JE., Casarett D., Spence C., Rhodes R., Connor S. 2007
Screening for psychological distress in palliative care: performance of touch screen questionnaires compared with semistructured psychiatric interview. Thekkumpurath P., Venkateswaran C., Kumar M., Newsham A., Bennett MI. 2009
Evaluations of end of life with dementia by families in Dutch and U.S. nursing homes. van der Steen JT., Gijsberts MJ., Muller MT., Deliens L., Volicer L. 2009
Patient autonomy problems in palliative care: systematic development and evaluation of a questionnaire. Vernooij-Dassen MJ., Osse BH., Schadé E., Grol RP. 2005
Palliative care outcomes in surgical oncology patients with advanced malignancies: a mixed methods approach. Wallen GR., Baker K., Stolar M., Miller-Davis C., Ames N., Yates J., Bolle J., Pereira D., St Germain D., Handel D., Berger A. 2012
Family caregiver quality of life: differences between curative and palliative cancer treatment settings. Weitzner MA., McMillan SC., Jacobsen PB. 1999
Effects of a transitional palliative care model on patients with end-stage heart failure: a randomised controlled trial. Wong FK., Ng AY., Lee PH., Lam PT., Ng JS., Ng NH., Sham MM. 2016
Understanding the association between employee satisfaction and family perceptions of the quality of care in hospice service delivery. York GS., Jones JL., Churchman R. 2009
Identifying psychological distress at key stages of the cancer illness trajectory: a systematic review of validated self-report measures. Ziegler L., Hill K., Neilly L., Bennett MI., Higginson IJ., Murray SA., Stark D. 2011
Effects of a physician-led home care team on terminal care. Zimmer JG., Groth-Juncker A., McCusker J. 1984
A randomized controlled study of a home health care team. Zimmer JG., Groth-Juncker A., McCusker J. 1985
Early palliative care for patients with advanced cancer: a cluster-randomised controlled trial. Zimmermann C., Swami N., Krzyzanowska M., Hannon B., Leighl N., Oza A., Moore M., Rydall A., Rodin G., Tannock I., Donner A., Lo C. 2014
Measuring symptoms of grief and bereavement. Zisook S., Devaul RA., Click MA. 1982
Assessing complicated grief using the Two-Track Bereavement Questionnaire (TTBQ). The 10th international conference on Grief and Bereavement in Contemporary Society: East meets West expanding frontiers and diversity not listed 2014
Faschingbauer T, DeVaul RA and Z. S 1987
Recommended respiratory disease questionnaire for use with adults and children in epidemiological research Ferris, B. 1978
A category scale with ratio properties for intermodal and interindividual comparisons. Psychosocial Judgements and the Process of Perception. Berlin, Deutscher Verlag. 1982
Factor structure of the bereavement experience questionnaire: the BEQ-24, a revised short-form Guarnaccia CA and H. B 1998
Heyse-Moore, L. 1993
Validation of the Hospice Quality-of-Life Index and the Constipation Assessment Scale in end-stage cardiac disease patients in hospice care McMillan SC, Dunbar SB and Z. W. 2008
National voluntary consensus standards for symptom management and end-of-life care in cancer patients National Quality Forum 2006

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