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Project: Strategies for Patient, Family, and Caregiver Engagement. Technical Brief

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Associated Extraction Forms

Title Created by Key Questions Addressed Form Notes
PFE extraction form Asar Das 1, 2

Associated Studies (each link opens a new tab)

Title Author Year
Mobile Apps to Support the Self-Management of Hypertension: Systematic Review of Effectiveness, Usability, and User Satisfaction. Alessa T., Abdi S., Hawley MS., de Witte L. 2018
The effectiveness of patient activation intervention on type 2 diabetes mellitus glycemic control and self-management behaviors: A systematic review of RCTs. Almutairi N., Hosseinzadeh H., Gopaldasani V. 2020
Effects of Adult Patient Portals on Patient Empowerment and Health-Related Outcomes: A Systematic Review. Ammenwerth E., Hoerbst A., Lannig S., Mueller G., Siebert U., Schnell-Inderst P. 2019
Communication between healthcare professionals and relatives of patients approaching the end-of-life: A systematic review of qualitative evidence. Anderson RJ., Bloch S., Armstrong M., Stone PC., Low JT. 2019
Effectiveness of individual strategies for the empowerment of patients with diabetes mellitus: A systematic review with meta-analysis. Aquino JA., Baldoni NR., Flôr CR., Sanches C., Di Lorenzo Oliveira C., Alves GCS., Fabbro ALD., Baldoni AO. 2018
Examining Interventions Designed to Support Shared Decision Making and Subsequent Patient Outcomes in Palliative Care: A Systematic Review of the Literature. Baik D., Cho H., Masterson Creber RM. 2019
Exploring effectiveness and effective components of self-management interventions for young people with chronic physical conditions: A systematic review. Bal MI., Sattoe JN., Roelofs PD., Bal R., van Staa A., Miedema HS. 2016
Web-Based Versus Usual Care and Other Formats of Decision Aids to Support Prostate Cancer Screening Decisions: Systematic Review and Meta-Analysis. Baptista S., Teles Sampaio E., Heleno B., Azevedo LF., Martins C. 2018
eHealth for Patient Engagement: A Systematic Review. Barello S., Triberti S., Graffigna G., Libreri C., Serino S., Hibbard J., Riva G. 2015
Self-Management Education Through mHealth: Review of Strategies and Structures. Bashi N., Fatehi F., Fallah M., Walters D., Karunanithi M. 2018
Feasibility and Efficacy of Decision Aids to Improve Decision Making for Postmastectomy Breast Reconstruction: A Systematic Review and Meta-analysis. Berlin NL., Tandon VJ., Hawley ST., Hamill JB., MacEachern MP., Lee CN., Wilkins EG. 2019
Engaging patients to improve quality of care: a systematic review. Bombard Y., Baker GR., Orlando E., Fancott C., Bhatia P., Casalino S., Onate K., Denis JL., Pomey MP. 2018
Transition of care for adolescents from paediatric services to adult health services. Campbell F., Biggs K., Aldiss SK., O'Neill PM., Clowes M., McDonagh J., While A., Gibson F. 2016
A systematic review of effectiveness of decision aids to assist older patients at the end of life. Cardona-Morrell M., Benfatti-Olivato G., Jansen J., Turner RM., Fajardo-Pulido D., Hillman K. 2017
Effectiveness of the mHealth technology in improvement of healthy behaviors in an elderly population-a systematic review. Changizi M., Kaveh MH. 2017
Serious games for improving knowledge and self-management in young people with chronic conditions: a systematic review and meta-analysis. Charlier N., Zupancic N., Fieuws S., Denhaerynck K., Zaman B., Moons P. 2016
What approaches for promoting shared decision-making are used in child mental health? A scoping review. Cheng H., Hayes D., Edbrooke-Childs J., Martin K., Chapman L., Wolpert M. 2017
A systematic review of telehealth tools and interventions to support family caregivers. Chi NC., Demiris G. 2015
Technology-Mediated Interventions and Quality of Life for Persons Living with HIV/AIDS. A Systematic Review. Cho H., Iribarren S., Schnall R. 2017
Educational and behavioural interventions for anticoagulant therapy in patients with atrial fibrillation. Clarkesmith DE., Pattison HM., Khaing PH., Lane DA. 2017
The Impact of Patient Participation in Health Decisions Within Medical Encounters: A Systematic Review. Clayman ML., Bylund CL., Chewning B., Makoul G. 2016
Systematic review and critical appraisal of transitional care programmes in rheumatology. Clemente D., Leon L., Foster H., Minden K., Carmona L. 2016
Digital Health for Medication Adherence in Adult Diabetes or Hypertension: An Integrative Review. Conway CM., Kelechi TJ. 2017
Personalised care planning for adults with chronic or long-term health conditions. Coulter A., Entwistle VA., Eccles A., Ryan S., Shepperd S., Perera R. 2015
Interventions for promoting participation in shared decision-making for children with cancer. Coyne I., O'Mathúna DP., Gibson F., Shields L., Leclercq E., Sheaf G. 2016
Mobile health applications for chronic diseases: A systematic review of features for lifestyle improvement. Debon R., Coleone JD., Bellei EA., De Marchi ACB. -- Not Found --
Family-centred approaches to healthcare interventions in chronic diseases in adults: a quantitative systematic review. Deek H., Hamilton S., Brown N., Inglis SC., Digiacomo M., Newton PJ., Noureddine S., MacDonald PS., Davidson PM. 2016
Patient Portals Facilitating Engagement With Inpatient Electronic Medical Records: A Systematic Review. Dendere R., Slade C., Burton-Jones A., Sullivan C., Staib A., Janda M. 2019
Self-management interventions for adults with chronic kidney disease: a scoping review. Donald M., Kahlon BK., Beanlands H., Straus S., Ronksley P., Herrington G., Tong A., Grill A., Waldvogel B., Large CA., Large CL., Harwood L., Novak M., James MT., Elliott M., Fernandez N., Brimble S., Samuel S., Hemmelgarn BR. 2018
Mobile Health Applications in Weight Management: A Systematic Literature Review. Dounavi K., Tsoumani O. 2019
Digital health interventions to help living with cancer: A systematic review of participants' engagement and psychosocial effects. Escriva Boulley G., Leroy T., Bernetière C., Paquienseguy F., Desfriches-Doria O., Préau M. 2018
Patient Preferences and Shared Decision Making in the Treatment of Substance Use Disorders: A Systematic Review of the Literature. Friedrichs A., Spies M., Härter M., Buchholz A. 2016
Building patient capacity to participate in care during hospitalisation: a scoping review. Goodridge D., McDonald M., New L., Scharf M., Harrison E., Rotter T., Watson E., Henry C., Penz ED. 2019
A systematic review of the use of Acceptance and Commitment Therapy (ACT) in chronic disease and long-term conditions. Graham CD., Gouick J., Krahé C., Gillanders D. 2016
The effectiveness of the teach-back method on adherence and self-management in health education for people with chronic disease: a systematic review. Ha Dinh TT., Bonner A., Clark R., Ramsbotham J., Hines S. 2016
Impact of mHealth chronic disease management on treatment adherence and patient outcomes: a systematic review. Hamine S., Gerth-Guyette E., Faulx D., Green BB., Ginsburg AS. 2015
Hospital-to-Home Interventions, Use, and Satisfaction: A Meta-analysis. Hamline MY., Speier RL., Vu PD., Tancredi D., Broman AR., Rasmussen LN., Tullius BP., Shaikh U., Li ST. 2018
Self-management for adult patients with cancer: an integrative review. Hammer MJ., Ercolano EA., Wright F., Dickson VV., Chyun D., Melkus GD. -- Not Found --
A Systematic Review of Community Health Center Based Interventions for People with Diabetes. Han HR., McKenna S., Nkimbeng M., Wilson P., Rives S., Ajomagberin O., Alkawaldeh M., Grunstra K., Maruthur N., Sharps P. 2019
Multidisciplinary management of diabetic kidney disease: a systematic review and meta-analysis. Helou N., Dwyer A., Shaha M., Zanchi A. 2016
Do we know how to design effective health coaching interventions: a systematic review of the state of the literature. Hill B., Richardson B., Skouteris H. -- Not Found --
Patient Portals and Patient Engagement: A State of the Science Review. Irizarry T., DeVito Dabbs A., Curran CR. 2015
Computer technology for self-management: a scoping review. Jacelon CS., Gibbs MA., Ridgway JV. 2016
Video decision aids to assist with advance care planning: a systematic review and meta-analysis. Jain A., Corriveau S., Quinn K., Gardhouse A., Vegas DB., You JJ. 2015
Features and Effects of Information Technology-Based Interventions to Improve Self-Management in Chronic Kidney Disease Patients: a Systematic Review of the Literature. Jeddi FR., Nabovati E., Amirazodi S. 2017
Interventions to support shared decision making for hypertension: A systematic review of controlled studies. Johnson RA., Huntley A., Hughes RA., Cramer H., Turner KM., Perkins B., Feder G. 2018
A systematic review of the efficacy of self-management programs for increasing physical activity in community-dwelling adults with acquired brain injury (ABI). Jones TM., Dean CM., Hush JM., Dear BF., Titov N. 2015
Does Shared Decision Making in Cancer Treatment Improve Quality of Life? A Systematic Literature Review. Kashaf MS., McGill E. 2015
Self-management for bronchiectasis. Kelly C., Grundy S., Lynes D., Evans DJ., Gudur S., Milan SJ., Spencer S. 2018
Inpatient Portals for Hospitalized Patients and Caregivers: A Systematic Review. Kelly MM., Coller RJ., Hoonakker PL. 2018
Home telemonitoring and remote feedback between clinic visits for asthma. Kew KM., Cates CJ. 2016
Shared decision-making for people with asthma. Kew KM., Malik P., Aniruddhan K., Normansell R. 2017
Web-based Self-management Support Interventions for Cancer Survivors: A Systematic Review and Meta-analyses. Kim AR., Park HA. 2015
Smart Devices for Older Adults Managing Chronic Disease: A Scoping Review. Kim BY., Lee J. 2017
Effects of Community-Based Health Worker Interventions to Improve Chronic Disease Management and Care Among Vulnerable Populations: A Systematic Review. Kim K., Choi JS., Choi E., Nieman CL., Joo JH., Lin FR., Gitlin LN., Han HR. 2016
The Nature of Family Engagement in Interventions for Children With Chronic Conditions. Knafl KA., Havill NL., Leeman J., Fleming L., Crandell JL., Sandelowski M. 2017
Self-management assessment in multiple chronic conditions: A narrative review of literature. Ko D., Bratzke LC., Roberts T. 2018
Patient and provider attitudes toward the use of patient portals for the management of chronic disease: a systematic review. Kruse CS., Argueta DA., Lopez L., Nair A. 2015
The effect of patient portals on quality outcomes and its implications to meaningful use: a systematic review. Kruse CS., Bolton K., Freriks G. 2015
Secure Messaging in Electronic Health Records and Its Impact on Diabetes Clinical Outcomes: A Systematic Review. Kuo A., Dang S. 2016
The Use and Effects of Electronic Health Tools for Patient Self-Monitoring and Reporting of Outcomes Following Medication Use: Systematic Review. Lancaster K., Abuzour A., Khaira M., Mathers A., Chan A., Bui V., Lok A., Thabane L., Dolovich L. 2018
Peer support for people with chronic conditions in rural areas: a scoping review. Lauckner HM., Hutchinson SL. -- Not Found --
Impact of Transitional Care Services for Chronically Ill Older Patients: A Systematic Evidence Review. Le Berre M., Maimon G., Sourial N., Guériton M., Vedel I. 2017
A close look at lay-led self-management programs for chronic diseases and health care utilisation: A systematic review and meta-analysis. Lederle M., Bitzer EM. 2019
Effective behavioral intervention strategies using mobile health applications for chronic disease management: a systematic review. Lee JA., Choi M., Lee SA., Jiang N. 2018
Interventions for increasing the use of shared decision making by healthcare professionals. Légaré F., Adekpedjou R., Stacey D., Turcotte S., Kryworuchko J., Graham ID., Lyddiatt A., Politi MC., Thomson R., Elwyn G., Donner-Banzhoff N. 2018
Team-Based Care to Improve Diabetes Management: A Community Guide Meta-analysis. Levengood TW., Peng Y., Xiong KZ., Song Z., Elder R., Ali MK., Chin MH., Allweiss P., Hunter CM., Becenti A. 2019
Patient engagement in hospital health service planning and improvement: a scoping review. Liang L., Cako A., Urquhart R., Straus SE., Wodchis WP., Baker GR., Gagliardi AR. 2018
Use of Technology-Based Tools to Support Adolescents and Young Adults With Chronic Disease: Systematic Review and Meta-Analysis. Low JK., Manias E. 2019
Theory-Based Digital Interventions to Improve Asthma Self-Management Outcomes: Systematic Review. Lycett HJ., Raebel EM., Wildman EK., Guitart J., Kenny T., Sherlock JP., Cooper V. 2018
Apps and Adolescents: A Systematic Review of Adolescents' Use of Mobile Phone and Tablet Apps That Support Personal Management of Their Chronic or Long-Term Physical Conditions. Majeed-Ariss R., Baildam E., Campbell M., Chieng A., Fallon D., Hall A., McDonagh JE., Stones SR., Thomson W., Swallow V. 2015
Interventions for promoting participation in shared decision-making for children and adolescents with cystic fibrosis. Malone H., Biggar S., Javadpour S., Edworthy Z., Sheaf G., Coyne I. 2019
Assessment of the effects of decision aids about breast cancer screening: a systematic review and meta-analysis. Martínez-Alonso M., Carles-Lavila M., Pérez-Lacasta MJ., Pons-Rodríguez A., Garcia M., Rué M. 2017
The effects of shared decision-making compared to usual care for prostate cancer screening decisions: a systematic review and meta-analysis. Martínez-González NA., Neuner-Jehle S., Plate A., Rosemann T., Senn O. 2018
Shared decision-making for prostate cancer screening and treatment: a systematic review of randomised controlled trials. Martínez-González NA., Plate A., Senn O., Markun S., Rosemann T., Neuner-Jehle S. 2018
Are community-based nurse-led self-management support interventions effective in chronic patients? Results of a systematic review and meta-analysis. Massimi A., De Vito C., Brufola I., Corsaro A., Marzuillo C., Migliara G., Rega ML., Ricciardi W., Villari P., Damiani G. 2017
Understanding patient engagement in health system decision-making: a co-designed scoping review. McCarron TL., Moffat K., Wilkinson G., Zelinsky S., Boyd JM., White D., Hassay D., Lorenzetti DL., Marlett NJ., Noseworthy T. 2019
A Literature Review of Patient Education: Is IT Time to Move Forward? McIntyre R., Craig A. 2015
Use of Decision Aids with Minority Patients: a Systematic Review. Nathan AG., Marshall IM., Cooper JM., Huang ES. 2016
Chronic Diseases and Employment: Which Interventions Support the Maintenance of Work and Return to Work among Workers with Chronic Illnesses? A Systematic Review. Nazarov S., Manuwald U., Leonardi M., Silvaggi F., Foucaud J., Lamore K., Guastafierro E., Scaratti C., Lindström J., Rothe U. 2019
Impact of clinical pharmacist services delivered via telemedicine in the outpatient or ambulatory care setting: A systematic review. Niznik JD., He H., Kane-Gill SL. 2018
Patient, Family, and Community Advisory Councils in Health Care and Research: a Systematic Review. Oldfield BJ., Harrison MA., Genao I., Greene AT., Pappas ME., Glover JG., Rosenthal MS. 2019
Motivational Interviewing Improves Medication Adherence: a Systematic Review and Meta-analysis. Palacio A., Garay D., Langer B., Taylor J., Wood BA., Tamariz L. 2016
Internet-Delivered Self-management Support for Improving Coronary Heart Disease and Self-management-Related Outcomes: A Systematic Review. Palacios J., Lee GA., Duaso M., Clifton A., Norman IJ., Richards D., Barley EA. -- Not Found --
A Systematic Review: Family Support Integrated with Diabetes Self-Management among Uncontrolled Type II Diabetes Mellitus Patients. Pamungkas RA., Chamroonsawasdi K., Vatanasomboon P. 2017
Internet delivered diabetes self-management education: a review. Pereira K., Phillips B., Johnson C., Vorderstrasse A. 2015
Chronic disease management programmes for adults with asthma. Peytremann-Bridevaux I., Arditi C., Gex G., Bridevaux PO., Burnand B. 2015
A Scoping Review of Tailored Self-management Interventions among Adults with Mobility Impairing Neurological and Musculoskeletal Conditions. Plow M., Mangal S., Geither K., Golding M. 2016
The Effect of Using Mobile Technology-Based Methods That Record Food or Nutrient Intake on Diabetes Control and Nutrition Outcomes: A Systematic Review. Porter J., Huggins CE., Truby H., Collins J. 2016
Conditions potentially sensitive to a personal health record (PHR) intervention, a systematic review. Price M., Bellwood P., Kitson N., Davies I., Weber J., Lau F. 2015
Evaluating Patient Empowerment in Association With eHealth Technology: Scoping Review. Risling T., Martinez J., Young J., Thorp-Froslie N. 2017
Shared decision-making and outcomes in type 2 diabetes: A systematic review and meta-analysis. Saheb Kashaf M., McGill ET., Berger ZD. 2017
A Systematic Review and Meta-Analysis on Self-Management for Improving Risk Factor Control in Stroke Patients. Sakakibara BM., Kim AJ., Eng JJ. 2017
Shared Decision-Making: a Systematic Review Focusing on Mood Disorders. Samalin L., Genty JB., Boyer L., Lopez-Castroman J., Abbar M., Llorca PM. 2018
Blended face-to-face and online/computer-based education approaches in chronic disease self-management: A critical interpretive synthesis. Sangrar R., Docherty-Skippen SM., Beattie K. 2019
Self-management interventions for young people with chronic conditions: A systematic overview. Sattoe JN., Bal MI., Roelofs PD., Bal R., Miedema HS., van Staa A. 2015
What are the components of effective chronic condition self-management education interventions for children with asthma, cystic fibrosis, and diabetes? A systematic review. Saxby N., Beggs S., Battersby M., Lawn S. 2019
Educational interventions in peritoneal dialysis: a narrative review of the literature. Schaepe C., Bergjan M. 2015
Organizational- and system-level characteristics that influence implementation of shared decision-making and strategies to address them - a scoping review. Scholl I., LaRussa A., Hahlweg P., Kobrin S., Elwyn G. 2018
A structured review of chronic care model components supporting transition between healthcare service delivery types for older people with multiple chronic diseases. Sendall M., McCosker L., Crossley K., Bonner A. 2017
The impact of patient advisors on healthcare outcomes: a systematic review. Sharma AE., Knox M., Mleczko VL., Olayiwola JN. 2017
Mobile-Based Oral Chemotherapy Adherence-Enhancing Interventions: Scoping Review. Skrabal Ross X., Gunn KM., Patterson P., Olver I. 2018
Interventions for improving outcomes in patients with multimorbidity in primary care and community settings. Smith SM., Wallace E., O'Dowd T., Fortin M. 2016
Peer Support for the Hardly Reached: A Systematic Review. Sokol R., Fisher E. 2016
The availability and effectiveness of tools supporting shared decision making in metastatic breast cancer care: a review. Spronk I., Burgers JS., Schellevis FG., van Vliet LM., Korevaar JC. 2018
Decision aids for people facing health treatment or screening decisions. Stacey D., Légaré F., Lewis K., Barry MJ., Bennett CL., Eden KB., Holmes-Rovner M., Llewellyn-Thomas H., Lyddiatt A., Thomson R., Trevena L. 2017
A scoping review of the literature on benefits and challenges of participating in patient education programs aimed at promoting self-management for people living with chronic illness. Stenberg U., Haaland-Øverby M., Fredriksen K., Westermann KF., Kvisvik T. 2016
Shared treatment decision-making and empowerment-related outcomes in psychosis: systematic review and meta-analysis. Stovell D., Morrison AP., Panayiotou M., Hutton P. 2016
Economic evaluation of chronic disease self-management for people with diabetes: a systematic review. Teljeur C., Moran PS., Walshe S., Smith SM., Cianci F., Murphy L., Harrington P., Ryan M. 2017
Mobile Telephone Text Messaging for Medication Adherence in Chronic Disease: A Meta-analysis. Thakkar J., Kurup R., Laba TL., Santo K., Thiagalingam A., Rodgers A., Woodward M., Redfern J., Chow CK. 2016
Systematic literature review on effectiveness of self-management support interventions in patients with chronic conditions and low socio-economic status. Van Hecke A., Heinen M., Fernández-Ortega P., Graue M., Hendriks JM., Høy B., Köpke S., Lithner M., Van Gaal BG. 2017
Effects of self-management support programmes on activities of daily living of older adults: A systematic review. van Het Bolscher-Niehuis MJ., den Ouden ME., de Vocht HM., Francke AL. 2016
A realist review: what do nurse-led self-management interventions achieve for outpatients with a chronic condition? van Hooft SM., Been-Dahmen JMJ., Ista E., van Staa A., Boeije HR. 2017
Decision aids to help older people make health decisions: a systematic review and meta-analysis. van Weert JC., van Munster BC., Sanders R., Spijker R., Hooft L., Jansen J. 2016
Collaborative goal setting with elderly patients with chronic disease or multimorbidity: a systematic review. Vermunt NPCA., Harmsen M., Westert GP., Olde Rikkert MGM., Faber MJ. 2017
Decision aids for localized prostate cancer treatment choice: Systematic review and meta-analysis. Violette PD., Agoritsas T., Alexander P., Riikonen J., Santti H., Agarwal A., Bhatnagar N., Dahm P., Montori V., Guyatt GH., Tikkinen KA. -- Not Found --
Web-Based Tools for Text-Based Patient-Provider Communication in Chronic Conditions: Scoping Review. Voruganti T., Grunfeld E., Makuwaza T., Bender JL. 2017
Patient Education and Continuing Medical Education to Promote Shared Decision-Making. A Systematic Literature Review. Wagner A., Radionova N., Rieger MA., Siegel A. 2019
A systematic review of the effectiveness of stroke self-management programs for improving function and participation outcomes: self-management programs for stroke survivors. Warner G., Packer T., Villeneuve M., Audulv A., Versnel J. 2015
A systematic review examining whether community-based self-management programs for older adults with chronic conditions actively engage participants and teach them patient-oriented self-management strategies. Warner G., Packer TL., Kervin E., Sibbald K., Audulv Å. 2019
Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review. Warrington L., Absolom K., Conner M., Kellar I., Clayton B., Ayres M., Velikova G. 2019
The Effectiveness of Self-Management Mobile Phone and Tablet Apps in Long-term Condition Management: A Systematic Review. Whitehead L., Seaton P. 2016
Systematic Review of Integrated General Medical and Psychiatric Self-Management Interventions for Adults With Serious Mental Illness. Whiteman KL., Naslund JA., DiNapoli EA., Bruce ML., Bartels SJ. 2016
Information and communication technology-enabled person-centered care for the "big five" chronic conditions: scoping review. Wildevuur SE., Simonse LW. 2015
Video-based patient decision aids: A scoping review. Winston K., Grendarova P., Rabi D. 2018
Shared Decision Making in Pediatrics: A Systematic Review and Meta-analysis. Wyatt KD., List B., Brinkman WB., Prutsky Lopez G., Asi N., Erwin P., Wang Z., Domecq Garces JP., Montori VM., LeBlanc A. -- Not Found --
Digital Health Apps in the Clinical Care of Inflammatory Bowel Disease: Scoping Review. Yin AL., Hachuel D., Pollak JP., Scherl EJ., Estrin D. 2019
Context-Aware Systems for Chronic Disease Patients: Scoping Review. Yin K., Laranjo L., Tong HL., Lau AY., Kocaballi AB., Martin P., Vagholkar S., Coiera E. 2019
Theory-based self-management educational interventions on patients with type 2 diabetes: a systematic review and meta-analysis of randomized controlled trials. Zhao FF., Suhonen R., Koskinen S., Leino-Kilpi H. 2017
Effectiveness of Telemedicine for Controlling Asthma Symptoms: A Systematic Review and Meta-analysis. Zhao J., Zhai YK., Zhu WJ., Sun DX. 2015
Effectiveness of motivational interviewing interventions on medication adherence in adults with chronic diseases: a systematic review and meta-analysis. Zomahoun HTV., Guénette L., Grégoire JP., Lauzier S., Lawani AM., Ferdynus C., Huiart L., Moisan J. 2017
The impact of self-monitoring in chronic illness on healthcare utilisation: a systematic review of reviews. McBain H., Shipley M., Newman S. 2015
VA Evidence-based Synthesis Program Reports. Self-management of Epilepsy: A Systematic Review. Luedke MW, Blalock DV, Lewinski AA, et al. 2019

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